My Personal Care Journey

#RareDiseaseDay

Today is Rare Disease Day. It is a much needed day of awareness. In all of my advocacy for caregiving and all of my search during my caregiving experience, rare diseases are rarely mentioned. Non-profits tend to focus on children’s cancer, adult cancer, dementia, Alzheimer’s and then the disease-specific research dwindles down from there. There is not any disease-specific research for…

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Tips & Tricks

Best Practices: Contacting Your Health Insurance

Dealing with the onslaught of medical bills and health insurance letters can be frustrating and downright infuriating at times, especially in a caregiving situation. It becomes necessary sometimes to reach out to our health insurance to find out just exactly what is going on. Maybe a bill was more than you expected or possibly never got paid at all. If…

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My Personal Care Journey

I’ve Been Thinking

Oftentimes I sit and catch myself off guard because I start thinking about the past. I think about how I made the decision to care for my husband before we were even dating, we were just best friends. I think about how what I thought was a severe sinus infection for him turned into a nightmare that almost ended his…

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